The Dystonia Medical Research Foundation (DMRF) is an organization dedicated to finding a cure for dystonia. This devastating neurological movement disorder affects an estimated 300,000 people in North America alone. Often misunderstood by the public and misdiagnosed by medical doctors, dystonia has silently become the third most common movement disorder after Parkinson's disease and tremor.
Dystonia is a rare neurological movement disorder that causes the muscles to contract and spasm involuntarily. People with dystonia cannot control or predict the movement of their own bodies. There are various forms of the disorder resulting in twisting, painful contortions of a single area of the body or even the entire body. The disorder affects men, women and children of all ages and backgrounds. It is the third most common movement disorder following essential tremor and Parkinson's disease. Life with dystonia is not easy. In addition to the physical pain and lack of motor control affecting mobility, handwriting, speech, and other key functions, individuals are often singled out because of their appearance. Dystonia disables children and strikes adults in their prime. It affects every aspect of a person's life: from how they move to how they perceive themselves to how they interact with others.
Dystonia Zoo Walks are unique events with a “twist”. Dystonia Zoo Walks do not have a formal walking course – in fact participants don’t have to walk at all. Dystonia Zoo Walks are family-friendly community events to raise awareness of dystonia, a little-known neurological disorder, and to support the work of the DMRF. Participant teams at Zoo Walks represent families impacted by dystonia, their friends and colleagues, and local healthcare institutions. Participants enjoy festivities directed to a family audience and then are free to enjoy the zoo at their leisure, raising awareness with their t-shirts. The walks raise awareness of this disorder and funds for research in communities across the country.
Dystonia Medical Research Foundation / One East Wacker Drive, Suite 1730, Chicago, Illinois 60601-1980
Phone: 312-755-0198 / Toll Free: 800-377-DYST (3978) / Fax: 312-803-0138
email@example.com / www.dystonia-foundation.org / EIN#95-3378526